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| The reason behind this website:I am a GUCH which stands for Grown up with Congenital Heart and now in 2010 I am one of many thousands who have survived to adulthood. We do not know the outcome but this website is here to help educate more people about CHD and to raise a wareness. There are still many babies being born today with CHD but now have a greater chance of surviving than they did 30 - 40 years ago.
I was born with only one TYPE of CHD, I was one of the blue babies due to being
born with what is called Transposition of the Great Arteries TGA, well it is NOT CURED
only fixed and I will have problems in the forseeable future but hey I
live life to the full.
We are here to give hope, just like Mark O'Shea who is an Australian legend. He has done a video giving hope to families around the world showing kids that nothing, not even open heart surgery as
an infant, can stand in the way of living life to the fullest! As one friend put it " (so here it is, I hope you enjoy it).
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CHD-UK's history
CHD-UK was started in May 2007 by setting up a group on Facebook and a page on MySpace and it was built up from there. I have been writing blogs about the different types of CHD's and other necessary information, such as, Endocarditis, What type of Tests does a CHD'er have?
This website is now the main page for CHD-UK.
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Customer testimonials
We received this from a mum in relation to the Article published on the Newcastle Chronicle webiste:
This was posted by: Rana Manzi (Orange County, CA)Hazel, I hope you realize what a truely amazing inspiration you are to
heart mums. To see you 37 and thriving gives us all hope that no
surgeon or doctor can even begin to give us! THANK YOU!
********************************************************************************************************** Here is a few customer testimonials that we have received in regard to CHD-UK website.
I think story sharing helps us CHD parents validate our feelings and gives us the opportunity to feel normal. No one understands what it's like to have a sick child or to be a CHD survivor unless you've been there yourself. Keep up the great work!
Ruth Estwick: 24th April 2010
  Hello, I am Amanda Carr, mam to Tegan age 5, non CHD and Emerald, age 17
month with a repaired Coarctation of the Aorta. How I wish I had found
your site sooner. It is amazing, no nonsense and straight forward. Whilst I
feel the medical team are amazing, we are under Newcastle Freeman, I feel I
have learnt more today than in the past 17 month of learning about her
condition. Many many thanks, Amanda Carr.
Amanda Carr. 6th September 2009************************************************************************************************************* Hazel,
It is so great to know that there is someone out there that has taken life so long with CHD.
I am 26 years old and had a Mustard procedure when I was 6 months old. I hope I can join your friend and learn more from you about life with CHD..
Sumari Van Dyk. 17th Jan 09
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Thank you for all your hard work and effort with this website, it really is a kind work.
Tabea Bruce, 20th Jan 09
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Thanks babes its beautiful. (In regard to the CHD Angels page)
Julie Chambers, 20th Jan 09
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I'm so happy to have got in contact with you and praise the work you do and support you give,you are truely special....xxxxxx
Jemma Kirkhan, 20th Jan 09
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Hi Hazel. I am a British guy living in NZ. Born in 70 with TGA. I have just become friends of Stuart Watson, he told me about your group. Good work!
Victor Wiggins
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All I want to say is that lots of people think you are doing great and you help many and that's what counts
Alexandra Mouhsine, 2nd April 2009
********************************************************************************************************** Here is a few customer testimonials that we have received whilst doing the CHD-UK page on MySpace.
Friends...if you have not already discovered this AMAZING CHD awareness
& support myspace....please add CHD UK....and don't let the "UK "
fool you....while Hazel, the moderator, is from the UK, she spreads
awareness for all...and does an amazing job at it! Very much like me
(and why I love her so)...she believes that we should all come together
and spread awareness as a TEAM...you will not see any drama here...it's
all about AWARENESS & SUPPORT!! She sends out daily all-in-one
bulletins that include all the CHD updates & info that she has come
across in bulletins and she does a lot of blogging about CHD. But
there is more... Hazel is a wonderful resource because she is an adult
living with CHD!!
So please...if you have not already done so...add CHD UK! It's a wonderful resource!
http://www.myspace.com/chduk
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Posted by Seraphim Children Projects
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From: 1/125 babies are born with a CHD
Date: 23 Jan 2008, 23:54
Make sure to check out the daily bulletin posted by CHD UK. It's always
very informative and I am very greatful that she takes the time to do
it each day.. We are so lucky to have such a great friend on our side!
Thanks!
If you need anything be sure to ask..
YOU can do whatever you want, cause you're awesome! :) Anything you need let me know. I will definitely find time to help! :)
-Kelly
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†Crosses for Kids†
Date: 01 Feb 2008, 15:16
hello, I just wanted to tell you, that what you do is wonderful.
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