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Educating and Raising Awareness of Congenital Heart Defects
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Every Baby Needs Tests for CHD
This page is about raising awareness of the need for testing babies for CHD.  Since the early 1970's or even 1950's medicine has advanced greatly, so much so that you can now have a 5D scan of your baby which will be able to detect the smallest of holes in the heart.  So, please take a read and if you find it moving, then by all means sign the current petitions that we and several friends are running.

Taken from my MySpace page: www.myspace.com/everybabyneedstests_4_chd

Think about this sentence:

Congenital Heart Defects are not always found during pregnancy or at birth, many are not found till childhood, adolescence, adulthood, or after death when it is to late.


This is why, we believe that every baby needs an echocardiogram and/or a pulse oximetry before they leave hospital to save lives of babies and to prevent babies who have heart abnormalities getting so ill before it's detected.


We are campaigning for the need for every baby to have a routine test whether it is an echocardiogram or pulse oximetry testing, or both within 24 hours after they're born.


Most babies appear healthy at birth yet soon after they get home things can change dramatically, the lucky ones are the ones who survive, and yet many babies still die unnecessarily. We want every baby to have an echocardiogram or pulse oximetry test, or both before they leave hospital as part of the routine exam to save the lives of our babies.


If you feel you would like to join this page just to raise awareness or because you have had experiences with this please do so and get your friends to join too.


As mentioned previously, there is also other ways to help check babies after birth for CHD:

1) feotal echocardiogram, and

2) the pulse oximetry testing(for further information see page titled Newborn Screen for Congenital Heart Defects: Pulse Oximetry


We support both ways and still feel that an echocardiogram after birth is needed as it'll help detect CHD that the 20 week scan might still miss.


We are currently waiting to hear about the results of PULSE OXIMETRY TESTING (there is currently a trial being carried out in a Birmingham Hospital, England to see whether this is a reliable way of testing for CHD after birth. We know that an echocardiogram is.


To see what it looks like when you have an echocardiogram click on this link:http://www.heartsite.com/html/echocardiogram.html


The Petitions
Every Baby Needs an Echocardiogram
Closing: World petition tba - to sign please click on the pic to take  you to the petition
UK Petition closed on 7th April 2009

Authors: Sam Mercer, Helen Howarth and Hazel Hunt (Every Baby Needs an Echocardiogram Group on Facebook)



Here is a response from a parent who is a journalist to the reply we got from 10 Downing Street  Echocardiogram Petition response to 10 Downing Streets reply

Awareness of Half a Heart
Closing:
Author:
Kerry Card, HLHS Awareness UK

Help us fight to get more media awareness of CHD's.  This petiton is called Awareness of Half a Heart because Kerry's son was born with Hypo-plastic Left Heart Syndrome and she believes that the media are not doing enough to raise awareness of HLHS let alone any other CHD.  Kerry says "The main aim is to raise HLHS and all other CHD's." 
So, come on, please sign this petition. 
"Our aim is to get 10,000 signatures, can we do it? With your help we can."


click here to sign the petition


New Government Heart Plan

Closing:
Author:
British Heart Foundation



We need a new government plan.
Why? Because the Government has yet to commit to a new plan for tackling heart and circulatory conditions in England over the next decade and you deserve better.

To find out more information in regard to the petition and to sign the petition

click here
,





Media Awareness for CHD Petition

Closing:
31st December 2008 UPDATE: This petition is NOW CLOSED but if you want further information please email us.
Author:
Miss Sandra Kay (www.myspace.com/angelinasfriends)