You can also follow us on the above:
You can also donate via texting: CHDU1971 to 70070. Max donation is £10.00
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Where: UK: online, near you, everywhereWhy: To raise awareness of CHD's and promote echocardiograms and pulse oximetry.
Continuing to raise money to buy the multi-function patient monitor via 'Wallace & Gromit The Grand Appeal Charity' (Charity Registration No. 1043603) who will direct all the funds raised for the multi-function patient monitor to Bristol Children's Hospital.
To view items click on the link below:
(CHD Awareness Week 2012)
NOTE: If you'd like to be involved or do any fundraising during Congenital Heart Defects
AwarenessWeek please email usEXCITING NEWS COMING IN JANUARY 2012.
Check back in January.
CAMPAIGNS: Pulse Oximetry & Echocardiograms
Click on the picture to take you to the information
Adult Congenital Heart Services Under Review. Following the high-profile Safe & Sustainable review of childrens’ cardiac services, the NHS is
also reviewing the services for congenital heart patients who have grown beyond childhood.
To read about it, click here.
Some Children's Heart Units will be Closing.
As most of you in the UK are aware, there has been a process going on in regard to closing Children's Heart Units down in various hospitals. If you would like to know more then please read the Safe and Sustainable page in regard to the public consultation which ran until 1st July 2011
http://www.specialisedservices.nhs.uk/safe_sustainable/public-consultation-2011
FUNDRAISER: Multi-Function Patient Monitor
The founder of CHD-UK was born with a Congenital Heart Defect (CHD) that is known as TGA (Transposition of the Great Arteries).
Through her own experiences she knows that the need for increased
awareness of CHD is essential, which is why CHD-UK was set up: to raise
awareness and educate people about this number one birth defect.
Anyone who has or knows someone affected by a CHD is welcome, as is anyone who doesn't
but would like to show their support and/or find out more
about this defect. It is not solely for the
UK as we would like to help
as many people as possible. It affects people all around the world.
Our aims:
- To educate and raise awareness of Congenital Heart Defects.
- Promote/Campaign for the need for testing prior to birth with the use of (Echocardiograms) and on newborns (neonatal).
- Promote/campaign to have all newborns (neonatal) tested for congenital heart defects with the use of pulse oximetry.
- Pulse oximetry to become one of the required tests to determine
heart problems in newborns (neonatal). There are currently two which
obviously do not pick them up because it is normal for neonatals to have
murmurs in the first 24 hours whereas a pulse oximetry will determine
the amount of oxygen in a neonatal.
- To get the media more interested in what it means to be born with a
CHD and what the future is like for first generation of survivors
- To get the media to inform the general public correctly about CHDs.
- To educate the public the differences between congenital heart defects and coronary heart disease.
Just
imagine that you work with people every day and never noticed that they
have a heart defect or went through major surgery. You wouldn't know
just by looking at the person. CHD is not visible, our scars are hidden.Please make a donation and support our work. We are 100% supported by the general public's donations..
This is so that we can continue to keep CHD-UK up and running whilst educating, raising awareness and support for Congenital Heart Defects.
Organ Donor Register:
In memory of:
Lewis Prior and Zoe Chambers
If you haven't signed up to become a donor yet, then please click on the 'Signed up yet?' picture
CHD-UK's First ever interview.
Interview with TechniCavita
Click on the link to take you to the Statistics.
Statistics of Congential Heart Defects
The Faces behind CHD
You could walk straight past any one of us (from this slideshow) in the street and you wouldn't realise we have a heart defect